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PC Patient Suppport Meeting, Oct 22nd-24th 2010, Edinburgh, Scotland

September 16, 2010
Dates: October 22-24, 2010
Best Western Edinburgh Capital Hotel

Best Western Edinburgh Capital Hotel

Location: Best Western Edinburgh Capital Hotel
187 Clermiston Road, Edinburgh, Lothian EH12 6U
Telephone: 0131 5359988
Fax: 0131 3349712
Email: reservations@edinburghcapitalhotel.co.uk
The meeting will begin Friday evening, October 22nd with registration and a welcome dinner and will continue
with presentations and discussions on Saturday, October 23rd and half day on Sunday, October 24th. The meet-
ing will conclude with a luncheon at noon on Sunday, October 24th.
For more information please download the pdf below or visit www.pchyonychia.org
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Wales 300 mile bike ride raises £1600

August 12, 2010
Tom Baker, a PCer, with 4 friends completed a sponsored cycle ride covering almost 300 miles of the Welsh countryside to raise funds for PC Project UK.
Starting in Swansea, they cycled to Aberystwyth, before heading to Lake Bala, then down to Rhayader and finally back to Swansea.
Nearly £1,600 was raised – well done to Tom and his cycling friends.
A report of the event can be found here
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Chess tournament, Dundee

August 9, 2010
Many thanks to Lloyd Hughes for organising another chess tournament and thanks to all the players who participated in this event raising £75 for PC Project UK.
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Mat Walls 10k Manchester run raises £1,200

May 15, 2010

Mat Walls (Tania Rylands) younger brother ran the Manchester 10K on 16th May 2010 he raised £1,200 for PC Project UK

Well done Mat & thanks from us all.

The PC Project UK Team.

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Craft Sale, Fife, Scotland.

April 30, 2010

Another successful sale of handmade gifts by two local ladies. Thanks to all who supported this event.

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Second Chess Tournament, Dundee, Scotland

December 2, 2009

Chess Tournament, Ninewells Hospital, Dundee.

A small chess tournament, organised by Lloyd Hughes,  was held on the evening of 2nd December at Ninewells Hospital, Dundee. Many thanks to all the players who participated and supported this PC fundraising event.

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Christmas gift sale WTB, University of Dundee

November 19, 2009
Another very successful sale of handmade Christmas gifts by two local ladies together with some home baking from lab members raised £402.  Thanks to all members of the WTB complex who supported this event so generously.
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Craft sale, Crail, Fife, Scotland

October 31, 2009
Two ladies from the Crail area have been busy all year sewing and making gifts for local craft sales to raise funds for PC Project. They

Picture of the goods on offer

have already raised more than £500 this year.

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1st Dundee FIDE Chess Challenge

August 30, 2009
20 players participated in the first FIDE chess event to
be held in the University of Dundee. David Findlay and
Stephen Hogg (both Dundee Victoria) won the event with
scores of 4/5. Some excellent chess was played over the
course of the weekend some of which will appear in future
editions of Scottish Chess.
The event also supported the Pachyonychia Congenita
Project UK. This Dundee‐based Scottish Charity promotes
education and research into congenital disabling skin
blistering disorders and supports those affected and their
families.
Thanks to Norman Skillen of South Morningside Chess
Club for use of their chess sets/clocks for the weekend and
Jim Anderson who was the arbiter. Finally, I must thank all
the players for supporting the event in its first year and I
hope to see them next year.
Prize List for the 2009 Dundee FIDE Chess Challenge
1st = Stephen Hogg & David Findlay (both Dundee Victoria)
(4/5)
2nd Mike Ridge (Edinburgh)
(3.5/5)
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Colleen Blair’s three lochs swim challenge for PC Project

August 9, 2009
We arrived at Killin at 11am on Sat 8th August 2009 to see Colleen step into the chilly water of Loch Tay (15 miles long) to start her marathon swim – anyone who has even paddled in the lochs of Scotland will know how cool the water can be, let alone in just a swimming costume! As she headed off into the distance, swimming alongside her support boat (which she is not allowed to touch during the swim or it is void. It’s there for safety and support), we headed back to the car to drive along the loch to catch a glimpse of her. Although the road is some distance from the loch we caught sight of the boat and Colleen when she was about 30 minutes into the swim. For us it was then to a nice warm café for lunch – unfortunately the weather was now changing and we could see the rain moving down the loch and it looked as though the boat crew would soon be as wet as Colleen. A few hours later we drove back along the loch to see if we could spot her again, heading down various tracks/driveways that we thought would lead us to the loch side. We did not manage to see her again but had heard from her mother, Irene, that all was going well.
Later yesterday evening, at 11pm we got a message from Irene to say that Colleen had successfully swum the 15 mile length of Loch Tay in 7 hours 54 minutes and was already two hours into her night swim along the 9.5 miles of Loch Rannoch. This she also successfully completed, finishing in 5 hours 45 minutes despite battling against the clouds of little Scottish beasties (midges!) that were attacking her and her boat crew.
Unfortunately, at 7.30 am on Sunday we got a message to say that the swim had had to be stopped in Loch Tummel due to a shoulder injury and the extreme cold. One of the difficulties with this type of swim is that although there are short rests between swimming each loch your arms can seize up due to cold and tiredness making it very difficult to continue with the next stage. While disappointing this is an amazing achievement completing the lengths of both Loch Tay and Loch Rannoch (24.5 miles) and something very few can claim to have done.
Colleen’s family and friends have also played a huge role in organising and running this event – her mum Irene organised the transport of Colleen, boat crew plus the boat along the winding roads between each of the lochs. She and friends met them at the end of each loch supplying them with warm soup and food. At the end of Loch Tay, Colleen’s sister provided a huge package of fish and chips from their nearby chip shop in Dunkeld which was greatly appreciated by Colleen and her boat crew, and also by some fishermen who hungry and curious as to what was going on gave a donation in exchange for some chips. The boat crew included Colleen’s father Bill, who rowed for hours through the changing weather and midges, guiding and supporting Colleen through the day and night along the lochs.
This is an amazing effort from all of them especially Colleen – well done!
Many thanks too to all those who have sponsored Colleen to raise funds for PC Project UK.
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